26 Weeks - PRAYER REQUEST!

We are asking for your prayers!

Right now, we are praying for the following:

1. Complete healing of dandy walker, diaphragmatic hernia, t13, and tetralogy of fallot

2. For Kinsley to be born alive, healed or not.

3. Strength and comfort for our family.

We would like to form a mass prayer chain for the week of 7/30/12-8/5/12! If everyone would be willing to pray for us during this next week, we would love to get a count to post here! We know that there is power in prayer and that the more people that are praying, the better! Feel free to forward this post to friends, family, church, etc. to get the request out there! Email us if you want to be included in our count. :)mrskatydavis09@yahoo.com

(You may email me here for anything, by the way. If you are going through a situation like ours and need someone to talk to, please do not hesitate to email!)



Today marks Kinsley's 26 week in-tummy birthday. I can't believe that so much time has passed already since our ultrasound when she was diagnosed with everything. It has been 5 1/2 weeks since the diagnosis of her anatomical problems and 3 weeks since the amnio results revealed our sweet girl has full Trisomy 13. I wasn't even sure if I would make it this far at all! She isn't giving up without a fight. That's my girl.

We have received many questions concerning exactly what Kinsley has been diagnosed with. I thought I would share with everyone in a little more detal.

• Rocker bottom feet - The normal development of bones in the human foot is disrupted. In a typical foot, the middle area is concave and creates an arch. In rocker bottom feet, the abnormal pattern of bones actually make the bottom of the feet bend in the opposite direction, appearing like the bottom of a rocking chair or rocking horse. Around 85% of babies with rocker bottom feet have an abnormality in their brain or nervous system. If the baby survives, surgery can correct this skeletal condition.
• Tetralogy of fallot -A congenital heart defect with 4 main characteristics: 
• Large ventricular septal defect (VSD) - hole in the septum that separates the two lower chambers of the heart. The hole allows oxygen rich blood to mix with oxygen poor blood.
• Pulmonary stenosis - pulmonary valve cannot fully open. The heart has to work harder to pump blood through the valve and as a result, not enough blood reaches the lungs.
• Right ventricular hypertrophy - Muscle of the right ventricle is thicker than usual. Occurs due to pulmonary stenosis. 
• Overriding aorta - The aorta is the main artery that carries oxygen rich blood from the heart to the body. In TOF, the location of the aorta is not in the right spot. It is right above the VSD. As a result, oxygen poor blood flows directly into the aorta.
• The outlook for this is not good. Not enough blood is able to reach the lungs to get oxygen and oxygen poor blood circulates the body. There is surgery to correct this and often times, many surgeries are required throughout the individual's life.
• Dandywalker syndrome - A congenital brain malformation involving the cerebellum (area of the back of brain that controls movement) and fourth ventricle. A major problem that occur is increased pressure and fluid buildup in the brain. Individuals with dandy walker often require a shunt to be placed surgically to help drain excess fluid around the brain. Some problems that are caused by dandywalker include seizures, vision loss or absence, jerky movements, and problems with the nerves that control breathing, neck, and eye movement. The severity of dandywalker greatly varies from individual to individual.
• Diaphragmatic hernia - A birth defect that occurs in the diaphragm. An opening is present in the muscle that separates the abdomen and chest. As a result, our baby's organs have all moved up and are in the chest cavity, resulting in restricted lung development. Surgery must be performed shortly after birth and recovery largely depends on how developed the infant's lung tissue is.
• Restricted lung development
• Enlarged kidneys

With a very long list of serious health problems stacked against her, we know that Kinsley needs a miracle to survive. Unfortunately, we were told that our daughter is not a candidate for any surgery due to her other conditions. She would not be considered stable to undergo any surgery due to the other conditions she has. Many of her ailments all are related to oxygen (diaphragmatic hernia causing restricted lung development, tetralogy of fallot, and dandy walker), it does not look good for her once she needs to start breathing on her own. We will be talking more with our neonatologist about all of these things on Wednesday. He will help us to prepare (the best we can) for what to expect and all of our treatment options.

We are still just praying that God will work a miracle for our family. I have started to accept that maybe He already has given us a miracle to allow her to still be with us today. Every day, more people join us on our journey and open their hearts to us. I also have heard people testify that our story has brought them closer to God and their family. Josh has even expressed that he has accepted Jesus and wants to be baptized. How wonderful is it that God used Kinsley to help her daddy make such an important decision?


Thank you guys so much! We would love to hear that you are on board to pray with us for next week's prayer drive! Let's try to get as many people praying for Kinsley as possible!